3 Things I want you to know about fibromyalgia

Whilst more people are certainly aware of it, I still come across many people who don't know what fibromyalgia is.  Or, if they have heard of it, they have no idea what it entails and how it affects those who are diagnosed with it.  It affects everyone differently but today I'm sharing the three most important things I think you need to know about fibromyalgia.

1 -  Fatigue

The problem with have fibromyalgia and other so-called invisible illnesses is that no one can see what you are dealing with and it can be hard to explain it at times.  For many of us, fatigue is one of our biggest symptoms.  

When I tell you I am tired, I mean it. I'm not exaggerating or complaining about it for the sake of it. I certainly don't want your sympathy, just some understanding. 

It isn't laziness or all in my head.  It isn't down to a bad diet or too many late nights and it isn't something that regular exercise will fix.  It is all-encompassing. It is frustrating and affects everything that I do. 

(See also Chronic Fatigue : it's more than being tired)

2 - Pain every day

Yes, every day.  I might not tell you I am in pain and it might rank differently on a 1-10 pain scale but it's still there.  Sometimes it will be niggling away in the background, not enough to stop me from getting on with my day, but I am aware of it all the same. And other days, it can bring me to tears because it is so overwhelming.  If I'm particularly quiet one day, it isn't because someone has annoyed me or I'm in a bad mood but because I'm having a high pain day.

3 - No 2 days bring the same pain

Often it is pain that causes a deep ache all over. Sometime it will be a burning pain or a deep stabbing. My joints often hurt from being sat for too long in the same position. Some days, I wince in pain as I slowly inch myself out of bed, hoping to avoid a jolt of pain as I stand. Other days? I can bolt upright with minimal pain. 

Some days, it is hard to focus.  I feel foggy-headed and tired (see fatigue above).  I'm barely able to keep my eyes open and all I can think about is having a nap.  It is a struggle to focus on anything for longer than a few minutes. And on others? I smash through the To Do List and then some. 

Of course, this is just my perspective. Others with fibromyalgia may have a different experience of it and clearly, I cannot speak for them. But, I do think these are the three most important things you need to know about fibromyalgia.  One of the most important things for people suffering from an invisible condition is that someone acknowledges it and attempts to understand. 

Do you have fibromyalgia? What do you want people to know about it?


  1. My daughter in law suffers from this horrible condition, thanks for explaining it to me #twinklytuesday@_karendennis

  2. So sorry you are suffering from this. I have a friend with fibromyalgia and know what she goes through #TwinklyTuesday

  3. I had never heard of it until another blogger mentioned it a few years ago. So awareness is good.

  4. I actually had no idea about any of this. Thank you for raising awareness of it and I'm sorry it's something you live with every day x #TwinklyTuesday